Privacy Policy

This website uses Google Analytics to help analyze how users use the site. The tool uses “cookies,” which are text files placed on your computer, to collect standard Internet log information and visitor behavior information in an anonymous form. The information generated by the cookie about your use of the website (including IP address) is transmitted to Google. This information is then used to evaluate visitors’ us of the webiste and to compile statistical reports on website activity for Rare disease matters.

We will never (and will not allow any third party to) use the statistical analytics tool to track or to collect any Personally Identifiable Information of visitors to our site. Google will not associate your IP address with any other data held by Google. Neither we nor Google will link, or seek to link, an IP address with the identity of a computer user. We will not associate any data gathered from this site with any Personally Identifiable Information from any source, unless you explicitly submit that information via a fill-in form on our website.

The subscriber list for the Rare disease matters e-Newsletter is strictly confidential. Its sole purpose is to deliver the e-Newsletter to those that have subscribed via a double opt-in process. It will not be sold, lent or in any other way shared with third parties.

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